Backpacks from Barbara
To honor the incredible life of Dr. Barbara Friedes, the Madelyn James Pediatric Cancer Foundation has developed a new, first of it’s kind program, in collaboration with her family, aligning with our mission of improving access and equity of care.
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Program Purpose
Developed in honor of Dr. Barbara Friedes, in collaboration with her family, to align with the Madelyn James Pediatric Cancer Foundation’s mission of improving access and equity in pediatric cancer care.
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Medical Context
Focuses on pediatric patients with B-cell Acute Lymphoblastic Leukemia (ALL).
Based on promising results from blinatumomab, a cutting-edge immunotherapy that significantly improves survival rates.
At CHOP (Children’s Hospital of Philadelphia), 40–50 children per year are expected to receive this treatment.
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Treatment Details
Blinatumomab is administered via a 1-month continuous infusion.
Hospitals aim to provide this treatment on an outpatient basis, as children tend to do better outside of inpatient settings.
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Challenge Addressed
Children must carry a small infusion pump, which requires a properly sized, secure medical backpack.
Current bag options are often ill-fitting, creating risks for medication safety and treatment efficacy.
Access to appropriate, kid-friendly medical bags is especially limited in underserved communities.
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Program Solution
Provides child-sized medical backpacks tailored for blinatumomab infusion.
Each backpack features flower and bow patches in memory of Dr. Friedes, who championed advancements in immunotherapy and supported the foundation’s mission.
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Impact
Enhances treatment experience and safety for children.
Promotes equity by ensuring all children, regardless of background, can access the tools they need for successful outpatient care.
What should we know about the services you provide? Better descriptions result in more sales.
What Makes this Bag Different?
Easy to Use
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Fun and Personalized
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Made with a child in mind
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✺ Frequently asked questions ✺
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Right now, bags are only being offered at The Children’s Hospital of Philadelphia. However, we hope this program will be taken national if funded.
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This bag was developed in by a product designer, our NP from CHOP, Katie, and from the work from Sick Kids with their original Blina Bags. It is specialty made for the drug Blina.
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Yes! You can sponsor the Blina Bags. Contact Jackie Didio at jackie@madelynjames.org for more details.
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At Madelyn James, we know that cures begin with access. And, if you do not have a bag that works for your child, they will have to restart this life-saving drug. These bags solve this problem and allow what all cancer parents want: normal moments of joy.
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When Barbara passed away, we wanted to do something to honor her life and legacy. Her passion was immunotherapy and giving kids less toxic treatments. That’s where these bags come into play. We miss you, Barbara!
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You can help by donating to Madelyn James Pediatric Cancer Foundation, and by advocating to your elected officials to fund the NIH and clinical trials that helped make this drug possible.